<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[Life Having Holt-Oram]]></title><description><![CDATA[LifeHavingHolt-Oram]]></description><link>https://shaunalombardi.wixsite.com/lifehavingholt-oram/blog</link><generator>RSS for Node</generator><lastBuildDate>Fri, 19 Jun 2026 07:52:45 GMT</lastBuildDate><atom:link href="https://shaunalombardi.wixsite.com/lifehavingholt-oram/blog-feed.xml" rel="self" type="application/rss+xml"/><item><title><![CDATA[Effective Tips for Managing a Busy Toddler with a Limb Difference]]></title><description><![CDATA[Toddlers are naturally curious and energetic, always exploring the world with enthusiasm. When a toddler has a limb difference, parents and caregivers face unique challenges in keeping up with their busy little one while supporting their development and independence. Managing a toddler with a limb difference requires patience, creativity, and practical strategies tailored to their needs. This post offers useful tips to help families navigate daily life with confidence and ease. Moira playing...]]></description><link>https://shaunalombardi.wixsite.com/lifehavingholt-oram/post/effective-tips-for-managing-a-busy-toddler-with-a-limb-difference</link><guid isPermaLink="false">69de29ebb9feb7db43b8db14</guid><pubDate>Mon, 20 Apr 2026 15:59:04 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f83c62_ecdb86394e614ac18b573eadcae5f6cd~mv2.png/v1/fit/w_1000,h_768,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Shauna Lombardi</dc:creator></item><item><title><![CDATA[Pandora Steals the Show: Breaking Barriers in Matilda Jr.]]></title><description><![CDATA[Shauna Lombardi Pandora performing "Quiet" Get ready to be inspired by Pandora's amazing performance as Matilda, in Matilda Jr. at OFC Creations Theater! As a talented aspiring young actress with a limb difference, Pandora is shattering stereotypes and proving that talent knows no bounds. Pandora's journey on the stage hasn't been without its challenges. If you are new to our Blog, Pandora was born with Holt-oram Syndrome which can cause limb differences. She has faced obstacles in some...]]></description><link>https://shaunalombardi.wixsite.com/lifehavingholt-oram/post/pandora-steals-the-show-breaking-barriers-in-matilda-jr</link><guid isPermaLink="false">69d3c105d36a85c300c0b531</guid><pubDate>Mon, 06 Apr 2026 15:06:57 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f83c62_8a914ad4e9e140edb51c1a55115feb08~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Shauna Lombardi</dc:creator></item><item><title><![CDATA[Escape Artists?]]></title><description><![CDATA[Having an appropriate car seat is a must for all little humans. And the process of picking the right car seat and installing that car...]]></description><link>https://shaunalombardi.wixsite.com/lifehavingholt-oram/post/escape-artists</link><guid isPermaLink="false">625d45e57e2384d7e5f80db9</guid><pubDate>Sun, 04 May 2025 18:23:58 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f83c62_45ecafa79fe1461a91effbf50b4803e6~mv2.png/v1/fit/w_1000,h_611,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Shauna Lombardi</dc:creator></item><item><title><![CDATA[Flying with Disabled Kids. ]]></title><description><![CDATA[Traveling with kids is probably the most stressful thing I have ever, I repeat EVER had to deal with. Especially flying. We travel a lot,...]]></description><link>https://shaunalombardi.wixsite.com/lifehavingholt-oram/post/let-s-fly</link><guid isPermaLink="false">6274d2e248073763242fa507</guid><category><![CDATA[Travel]]></category><pubDate>Sat, 12 Apr 2025 06:18:46 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f83c62_317d7ab7e0e1492182eec0ba0f8316b7~mv2.jpg/v1/fit/w_720,h_452,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Shauna Lombardi</dc:creator></item><item><title><![CDATA[Every Day Life]]></title><description><![CDATA[Holt-oram syndrome can cause some inconveniences in day to day life.  Pandora and Jude both face numerous obstacles on a daily basis. ...]]></description><link>https://shaunalombardi.wixsite.com/lifehavingholt-oram/post/every-day-life</link><guid isPermaLink="false">62648c0f394312d044a8926f</guid><pubDate>Sat, 24 Aug 2024 16:36:00 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f83c62_78142e973b6c416d8738a77863f218cc~mv2.png/v1/fit/w_541,h_355,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Shauna Lombardi</dc:creator></item><item><title><![CDATA[The Day I Knew She'd be Okay...]]></title><description><![CDATA[Everyone's a-ha moment will be different, for you it might be when you hold your baby for the first time, for others it could take days...]]></description><link>https://shaunalombardi.wixsite.com/lifehavingholt-oram/post/the-day-i-knew-she-d-be-okay</link><guid isPermaLink="false">625d269470ee193bf0e5372c</guid><pubDate>Thu, 22 Sep 2022 05:55:18 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f83c62_897ffc66111a4df0beac8453926e6fe5~mv2.jpg/v1/fit/w_540,h_960,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Shauna Lombardi</dc:creator></item><item><title><![CDATA[Welcome to Our World, a World of Holt-oram Syndrome (HOS)]]></title><description><![CDATA[No amount of prepping can prepare me for what to say/share in our first ever blog post.  Yeah, of course we have been sharing for a while...]]></description><link>https://shaunalombardi.wixsite.com/lifehavingholt-oram/post/your-title-what-s-your-blog-about</link><guid isPermaLink="false">625b7821938bd0b3e95ef096</guid><pubDate>Fri, 05 Aug 2022 02:14:57 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f83c62_b021082384f34919b7cbd81f2e72fba8~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Shauna Lombardi</dc:creator></item></channel></rss>