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What is Holt-oram Syndrome
Holt-oram Syndrome commonly presents in individuals as abnormalities of the hands, arms and shoulders. Many also have heart defects.
We have a little bit of all that going on in our family.
Mission
Our goal is to share our life experiences with the world, to show other's with Holt-oram they are not alone, while educating members outside of the community.
Vision
A world were people with disabilities are valued based on who they are as a person, and not by their disability.
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