Hello,

my name is Pandora, but you can call me Pandi if you like. I am 11 years old and was born with Holt-oram Syndrome just like my mom. I am artistic and creative, enjoy traveling with my family, and going to country music concerts. I have recently become passionate about theater and have been in about 9 musicals total! I have learned to overcome many obstacles thanks to the help of family, friends, and many other members of my community. For more detailed information about how my Holt-oram presents look below!

My Medical Story

Physical

Absent radius, ulna and humerus on my left arm.
My left hand has three fingers that do not bend well and sits directly off my should with a wrist joint.
Deformed clavicle bones, and loose shoulder joints.
My right arm is absent radius and ulna, with a shortened humerus.
My left hand has four finger, two of which are fused together.

Medical

Multiple holes in between upper and lower chambers of the heart, and one in the aorta.
- This is being monitored regularly.
Heart murmur.