Welcome to Life Having Holt-oram!
Hi! My name is Shauna, I am Married to David, and we have three amazing children Pandora , Jude and Moira. Now that we have introductions out of the way let's get to the important part! YOU!
We bet your here because you know someone or are someone who has Holt-oram Syndrome and your looking for other's like yourself. Or, maybe you found us seeking more information on how to handle whatever situation life throws at you!
Whatever the reason, we are happy you found us!
We are passionate about helping others especially children with physical disabilities. If you are struggling, just know that, no matter what, YOU are AMAZING, and we are going to prove to the world that our disabilities don't hold us back. They are what make us unique, innovative, creative and caring people.
Here we will share our ups and downs, our tips and tricks related to EVERYTHING we experience in life, and basically everything in-between, because education and understanding is what this blog is all about.
Don't ever hesitate to ask us anything, we love sharing!